I’m all down for a good old pity party now and then but as we approach the holiday season I’m taking time to reflect (yip I know it sounds cheesy!)…. And find the good stuff about life.
I’ve officially been unwell for over half my life which is crazy. I still remember the days when I was a pimply teenager too unwell to get out of bed and my only companionship was my cat and my mum.
Now I’m here. Running A Little Bit Yummy, cooking ridiculously delicious food and have a solid friend group who are always keen to eat cake and talk sh*t.
It’s got me thinking about if I’d change anything about my life. Some days still suck. And I mean suck big time. The throwing up. Passing out. Constant pain. These are the days where my biggest achievement is brushing my teeth. But for the most part life is pretty good.
Being sick has ironically shaped me in ways I could never have conceived. It’s helped me meet incredible people, inspired me to help others, and taught me more about myself than most 20 somethings know about themselves.
4 Lessons Being Chronically Ill Has Taught Me
It’s the little things that matter
Snuggling up in a fluffy duvet. Stealing cuddles with the neighbour’s cat. Sitting in the sunshine. Devouring chocolate brownie. And my fav – having hot chocolate delivered to me by my favourite person, my boyfriend (I can hear you gagging on the soppiness and I’m fine with that).
These little moments make life worth it. They make me smile and take a breath. Being a type A personality, I like to have everything planned out. It’s taken me the last five years to realize that life has other plans. I’m getting better at focusing on each day, having goals but learning to go with the flow. It’s finding the good moments in each day that makes my heart full.
Don’t treat your support network like crap (even if you feel like sh*t)
You might feel like sh*t but that doesn’t mean you can treat everyone else like that too. Some days my mouth gets away with me and the pain I’m feeling on the inside comes out. Or I’m so sore and lethargic that my body language sends the wrong message. I feel possessed by my unwellness.
And it hurts others. I can see it.
There is no excuse for this. I’m making a conscious effort to work on this behaviour and at the very least apologise if I screw up.
My friends and family are like my favourite blanket – they’ll always be there for the bad times, keep me warm, and get me through. It’s time I make sure that I nurture them.
Laugh every day and cry when you need to
On a bad day go to You Tube. I’m serious… you can’t not feel a little bit better after watching a cat riding on a robot vacuum wearing a shark costume.
It’s okay to feel sad and have a cry if you need to but try to have a giggle or a laugh each day. Don’t take yourself too seriously! Laughing is good for the soul and sometimes you just need to look for the giggle moment in your day.
Don’t wait to feel “better” to do things
I’m at peace with the fact that how I feel now might be as well as I ever feel. And goddamn it I’m still going to get through my bucket list even if it takes a bit more creativity to do it.
I used to say no a lot. Thinking I could just wait until magically I felt well again. This might not happen. It’s time to start living now.
Going to Brazil last year was liberating. I survived, I explored new cities, I experienced the vibrancy of another culture. Lots of people told me I couldn’t, I was too sick, it was too risky, I was being careless. But surely being too careful is wasting the life that you have. Being too scared to push the boundaries and accepting the status quo. I planned, I took amazing support with me, we had connections and help. It was a risk that was worth it. To be brutally honest, not every day when I travelled was a great day (let’s just say thank god for Imodium) but the memories I brought home are more valuable to me than anything I could own.
I now say yes more, whether it’s going to the mall or heading out to an event. I only cancel if I know I’m going to be a serious danger to myself if I leave the house. Most of the time I know that if I go, even just for a couple of hours, I’ll enjoy it. Give your illness the finger and get back out there.
Final Thoughts
For me my health journey has been a blessing in disguise. I’ve found my passion, I have an incredible network of friends, I know the type of human I want to be. AND I know that no matter how tough it gets there will be something good in each day.
Amazing Alana, thank you for sharing. You are an inspiration and helping so many people too on their life journeys.
Thank you for the lovely comment Larissa. If I can help make the journey easier for just one person then I’ve achieved my mission!
I’m the kind of person who would generally rather miss out on life than risk “disaster”. I am very risk averse! But now I am having to question myself. My IBS controls a lot of my life. It stops me from doing all sorts of things. But now, as a mother of one toddler who hopes to have 4 or 5 children, I am devastated at the thought of my IBS related limitations scaring me from having a family of that size, or worse, that it would negatively effect my child(ren)’s opportunities, experiences, and our relationship. I go through spells where several times a week it’s like having food poisoning and a stomach bug at the same time. How are you supposed to parent from the bathroom floor? You can’t drive your kids to lessons, cuddle them or play with them in that state, much less keep up with the necessities of life. Hopefully one day a cure will come.
Thank you for sharing Heather. It can be really tough but being open to seizing opportunities as they come is a really good first step. Have you had a chat with a dietitian who specialises in gut issues? They might be able to help you put together a better management plan to help manage symptoms. In the meantime, there is a lot of research happening behind the scenes on IBS and hopefully we will have some more answers or at least symptom management plans soon.
Hi Heather, I know exactly how you feel. I was 30 y/o with a 9 month old baby when I was officially diagnosed with IBS. I always had a sensitive stomach but after my son’s birth I had frequent episodes of sudden diarrhea. I had a full GI work-up with intestinal biopsies and was given the diagnoses IBS. At the time there was no diet such as the Fodmap to help and little was known. So I began a food journal to track my symptoms, eliminated foods and began taking Imodium daily. I went on to have 2 more children and experience all that motherhood had to offer. I think the most important thing for you to do (if you haven’t yet) is to find a good gastroenterologist and a dietitian to help you navigate this illness. There are so many wonderful resources available today! I have since over the years built up a tolerance to all the traditional oral medications (which was all that my doctor had to offer at that time) and now take a medication called Viberzi daily for IBS with diarrhea. I am confident with the Fodmap diet (from Monash University), a GI doctor who knows IBS and a good dietitian that you can go on to experience all your dreams of motherhood and stay in optimum health. Good luck!
Hi, thank you all for being there. I have just been put on the Fodmap Diet. Not very happy about it but if it will make me feel better I will certainly give it a try !
I am having a hard time figuring it all out. I do not have a dietitian or much info, but maybe being connected to you’ll will help, plus my calming down is helping.
Thank you for being there !
Hi Ann,
It can be really overwhelming at first but it does get much easier! We’re here to help. If you feel like you need more support as you move through the different phases of the low FODMAP diet then you might find our Wellness Club useful. It contains e-courses that walk you through every phase of the low FODMAP diet, meal plans, hundreds of recipes and you can email us with questions or for support as you need to. Here’s the link if you would like more information: https://app.alittlebityummy.com/meal-plan